A few days ago my blog went down and I received notes from women asking me if I was okay. I do appreciate that you care about what happens to me and that you miss this blog when it is not available. It was an error on the behalf of the company we used where the blogs are housed and they said it was due to ‘comment spam’. It was quickly straightened out and I have been catching up on comments which I try to do every day if I am well and don’t have other commitments.
I try to answer all comments left here and rarely spam any unless of course it is the few business people that slip through the spam protectors. It can happen of course and I try to take care of it quickly so they don’t keep doing it. There are times when I have had to spam a comment left by someone here who is angry with me, but I want to remind you that this is my own personal blog and not a support group and if you leave threatening or angry notes for me they will get spammed. This is rare however even after almost 5 years of writing. I write this blog to allow the women of the world to know how bad it can get when mesh turns to complications and I am so happy so many women leave their stories or leave how they handle their issues in comments. This means positive things for others to read even if it confirms the fact that mesh is their issue not all the other stuff doctors decide to blame.
Complications vary and the repercussions of mesh can be devastating in many ways, so when you leave a comment explaining what you are dealing with, that is a good thing. However, if you rant on about other things, or say things that I know can go against your case, I sometimes edit and leave some or I delete it all. I am sorry if that does not make some women happy, but if you do not like what I do you do have some control. Don’t read this blog if you don’t like me and start writing your own mesh life story.
You should understand how a blog works. If you go to Google and put in a sentence and some of the words will direct you to this blog, it could wind up anywhere on any blog I have written in the past 5 years. But I get notices to know where it went and I read every comment posted. Please understand that if you leave a comment asking me to call you and leave your phone number, I am sorry to say it probably won’t happen because I am often overwhelmed by all the pain of other women and I deal every day with my own complications and pain. I do this blog ALONE and at times I have to do other things so as not to go into a deep depression. You cannot imagine what it is like to read and hear all the stories of terrible things that have happened to women all because of these implant products.
When I see a lot of comments show up asking questions about a particular complication, I try to write a new blog with all the links to other blogs that could help you understand what is happening and things you can try to get relief. Nerve damage is a huge part of mesh injuries regardless of whether the change happened immediately after surgery or several years later. The problem with this complication is that other things can be blamed for your pain and hundreds of women will go through needless surgeries that won’t change their pain because shrinking mesh over time, or damage done at the time of the original surgery is the true cause. Nerve damage can show up in small ways at first and then grow horrendously over time and you will be told you need back or hip surgery when the real reason is damage to your pudendal, femoral or sciatic nerve is the true reason for your pain. So today I am going through my older blogs to give you direct links so that you can read and understand more about your own injury.
I cannot write about the things I do not have nor understand but I know a lot of women who have the complications I don’t have and at times I send them notes and ask for an update, perhaps a year or two later to see how they are doing and you can read their updates too. Dr. Raz has stated that approximately 30% of women will remain with permanent nerve damage and pain. But this is out of all the women who have traveled to UCLA for surgery. I honestly believe it is much higher, ranging from mild to severe damage and pain because no one keeps a check on this stuff when women report back to their doctors and women are being dismissed all over the world when they complain of nerve pain. It is easier for some doctors to blame other things rather than to acknowledge what is happening to women. But that leaves you guessing what is wrong or if they put mesh in you at all.
How do you find out if you had mesh implanted? The answer is simple. First get the hospital records from your original surgery, the operative report and operative nursing notes. These records will be stored somewhere even if it has been a few years, but you have to do the work or fight to get them. This blog will help you understand what to do and what to look for.
You may not understand the law of keeping records so this blog will explain those facts
If all your work fails and you do not know what was put into you then you can contact UCLA and have the translabial ultrasound done which will usually see mesh but you will be required to have a consult appointment. But the more work you do first will give you a chance at the best removal results. Read this blog
Now about nerve pain and damage
There is a small possibility that your nerve pain could be caused by implant clips used in your surgery. Read this blog to understand more
Because this happens to so many women I have dedicated a lot of time and effort into many blogs on this subject. But regardless of how many blogs I have written the way you will learn and understand your own complications is to read them. Please do not ask me questions that are already answered. Spend time and learn so that you understand and can decide how to handle your own complications. To understand how the nerves get damaged, read this blog
Here are more blogs on this subject and each one you read you will have more of an idea how to help yourself or cope with it.
This was written by a woman who truly understand nerve injuries because of her own mesh complications and her job. Read this
This blog will tell you about nerve neuromas
Our bodies are made up of many nerves and this will explain anal and vaginal nerve damage. Read this one
Now these blogs will tell you how I am managing my own nerve damage rather than live on prescription drugs that can destroy my liver and have many other side effects. It is not easy to do things alone, but sometimes when you don’t have a lot of money to go to alternative doctors you have to work out a plan for yourself and then make adjustments over time.
Read this one about my own leg pain. I have tried several brands of R Lipic acid and found out over time the best one is from Piping Rock because it has an ingredient to help absorb it better. Because of that I take less than I used to and now take 3 a day along with Benfotiamine. I began taking this after my mesh removal and you can read the original blog link at the bottom.
Some woman have nerve damage so bad that they go back to Dr. Raz to have the Interstem implant. I recently spoke to this woman over the phone and she told me without it she would not have any life at all. It doesn’t remove the nerve pain and takes time to learn how to use it, but if you are on enormous amount of pain medications, it may be something you are thinking about and you can read her story here
Nerve damage can also be really bad in your bladder and the pain is horrendous. I wrote about mine, but thankfully over time, doing self cath and taking supplements keeps mine at a minimal these days although at times I do have bad bladder spams. To understand more about your bladder, I wrote this blog
That blog was part two and this is part one
I also shared one woman’s comeback story about her pudendal nerve damage and although there is no cure, she has worked hard to keep living. This blog will take you to the first story about her as well as this update.
I also wanted you to understand how scar tissue can cause severe pain and more nerve damage but there is something you can try if you decided to. Read this
Today this blog marks 306 blogs I have written for you to read and learn from. You cannot learn about mesh complications if you don’t read to try to understand what yours may be. Above there is a wonderful search engine, and you can add words and find what you are looking for but because it is such a huge blog, I have taken a couple of hours this morning to gather as many informative blogs as possible to cover a wide range of nerve damage issues. Nerve damage is terribly painful and it stops your life dead in its tracks. I have been asked if having mesh removal was worth it and I can definitely say yes it was! I am permanently damaged by mesh, but without having it removed I doubt I would be here or writing to share what mesh does to us. It is not easy living with nerve damage but the main point is I am still living. That is how I have to view my own life and my future. I take it one day at a time and do what I can to expose all that is happening to women because of these terrible implant products.
I had to wait two years and seven months before Dr. Raz removed it all including the anchors that help it in place. The anchors can also cause terrible pain and while in they cause many women severe reactions to the anchors themselves. Few doctors can remove them and that is why I travelled out to UCLA. If you want to learn more about what to do to go there, I have written many blogs while out there and about my own surgery. You can read those blogs here
I did everything I could to get out to UCLA to have mine removed and it was far from easy. I had to sell things to pay for expenses and I can tell you that I am so glad that I did. It means I can continue to share here on this blog and can warn women about the dangers of mesh. Doing something good for others is what life is all about.
Lastly I did write a blog about medical marijuana and you can read it here